Links

A selection of some of the interesting websites for research and analysis I’ve come across… Got another one to suggest? Leave a comment.

AdvocateDirectory.org: “AdvocateDirectory.org is a product of years of networking and research by individuals who reached out to each other, shared their personal – and often tragic – stories of challenges with the medical system and who collaborated to function as the very first grassroots advocates calling for improvements in safety, quality and compassion in healthcare.”

Alliance for Human Research Protection: “The Alliance for Human Research Protection (AHRP) is a national network of lay people and professionals dedicated to advancing responsible and ethical medical research practices, to minimizing the risks associated with such endeavors and to ensuring that the human rights, dignity and welfare of human subjects are protected.”

Canadian Agency for Drugs and Technologies in Health: “Funded by Canada’s federal, provincial, and territorial governments, CADTH is an independent, not-for-profit agency that delivers timely, evidence-based information to health care leaders about the effectiveness and efficiency of health technologies.”

HealthNewsReview.org: “The mission of HealthNewsReview.org is to improve the public dialogue about health care by helping consumers critically analyze claims about health care interventions and by promoting the principles of shared decision-making reinforced by accurate, balanced and complete information about the tradeoffs involved in health care decisions. HealthNewsReview.org evaluates health care journalism, advertising, marketing, public relations and other messages that may influence consumers and provides criteria that consumers can use to evaluate these messages themselves. Improving the quality and flow of health care news and information to consumers can be a significant step towards meaningful health care reform.”

HealthyDebate.ca: “Our vision: A high quality health care system designed by an informed population. Our mission: 1. To provide accurate, easily accessible information about health care to the public, practitioners, journalists, students, managers and policy makers. 2. To provide a forum for accessible and thoughtful deliberation about Alberta, Ontario and Canada’s health care systems. 3. To increase the frequency with which health system leaders use evidence and informed public input when making policy and management decisions.”

Medicine and Healthcare Products Regulatory Agency’s Drug Analysis Prints: “Drug Analysis Prints (DAPs) contain complete listings of all suspected adverse drug reactions or side effects, which have been reported to the MHRA, via the Yellow Card Scheme for a particular drug substance. This includes all reports received from healthcare professionals, members of the public, and pharmaceutical companies.”

PharmaWatch Canada: “The Pharmawatch Canada blog is an initiative of PharmaWatch. Pharmawatch is an independent, Canadian, non-profit organization that was founded in 2001 to examine issues related to the health and safety of medical products and to support consumer reporting of suspected adverse drug reactions.”

Prescrire International: “Prescrire is a non-profit continuing education organisation, committed to better patient care. Prescrire and Prescrire International provide independent information, by and for healthcare professionals. For nearly 30 years, Prescrire has provided healthcare professionals – and via them, patients – with the clear, comprehensive and reliable information they need about drugs and therapeutic and diagnostic strategies.”

Retraction Watch: “Tracking retractions as a window into the scientific process.”

RxISK: “RxISK is the first free, independent website where patients, doctors, and pharmacists can research prescription drugs and easily report a drug side effect — identifying problems and possible solutions earlier than is currently happening.”

Therapeutics Education Collaboration: “The main goal of the Therapeutics Education Collaboration (TEC) is to provide physicians, pharmacists, nurses, nurse practitioners, physician assistants, naturopathic physicians, other health professionals, and the public with current, evidence-based, practical and relevant information on rational drug therapy. The overall philosophy of the TEC is to encourage clinicians to engage in shared informed decision-making, critical thinking, and exercise some degree of healthy skepticism when it comes to the use of new and old medications.”

Worst Pills: “Worstpills.org is researched, written and maintained by Public Citizen, a nonprofit, nonpartisan public interest group founded in 1971 to represent consumer interests in Congress, the executive branch and the courts. Consumer advocate Dr. Sidney Wolfe and his team of experts work for research-based, system-wide changes in health care policy, with a primary focus on working to ban or relabel unsafe or ineffective drugs and to encouraging greater transparency and accountability in the drug approval process.”

 

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